Joe Pugliese has been involved in the hemophilia community for the last 40 years. He started in 1978 as a sales representative in Chicago with the Armour Pharmaceutical Company. He held a variety of positions over the years including General Manager of Hemophilia Business Unit, and Vice President and General Manager of North America for Aventis Behring (successor company of Armour).

He joined Amerisource Bergen Specialty Group as President of the Specialty Pharmacy business in 2004, and departed in 2005 to pursue other interests in the hemophilia community. He signed on as a consultant to the Hemophilia Alliance to start their group purchasing organization in 2006 and was named the President of the Hemophilia Alliance in 2008. The organization has grown from 38 members in 2007 to 100 members today. Joe is looking forward to seeing this organization deliver its goal of achieving operational excellence in providing services for the hemophilia community.

Joe became Chairman of The Alliance Pharmacy in late 2010. The pharmacy, a 501c 3, is licensed as a pharmacy in all 50 states, has received ACHC accreditation, and has received its VAWD accreditation. The pharmacy manages a number of very successful trial programs for sophisticated pharmaceutical products like subcutaneous immune globulin and alpha one antitrypsin. Joe stepped down as Chair in 2017, but remains a very active Director.

Joe has been married to Karen for 44 years. They have five children, two daughter-in-laws, two son-in-laws and ten grandchildren.

Alison is the Director of Pharmacy and 340B Coordinator for the Hemostasis and Thrombosis Center of Nevada. She has been employed here since December 2018 and the pharmacy opened in her new facility in August 2019.

Alison is licensed in Nevada and Ohio. She received my B.S. in Pharmacy from the University of Toledo. She has hospital and PBM pharmacy experience.

Alison has been married to her husband, John for 21 years and they have three children. Her advocacy in the bleeding disorders community began when her second daughter was born in 2005 with afibrinogenemia. She has spoken in front of the Blood Products Advisory Committee regarding access for clotting factor to patients with factor I deficiency in the United States. She has served on the Board of Directors of her local chapter of the National Hemophilia Foundation as well as participated in state advocacy days in Carson City.

Jeff is currently a Director of Payer Relations for the Hemophilia Alliance, serving the Mid-Western United States. He has been with the Hemophilia Alliance since September of 2017.

Jeff started his career in hemophilia in 2004 when he was hired as the Psychosocial Specialist for the American Red Cross Badger Center for Bleeding Disorders in Madison, Wisconsin. In November 2005, the program and its staff became employees of the University of Wisconsin Hospital & Clinics (UWHC). Jeff was the Hemophilia Treatment Center Clinical Social Worker until 2017. In addition to being the Clinical Social Worker, he was responsible for overseeing most aspects of their 340B Program insurance and reimbursement activities. Jeff was the primary contact for insurance companies and worked very closely with patients on their health insurance needs and issues.

Jeff received his Bachelor’s Degree in Social Work from the University of Wisconsin La Crosse in 1996 and his Master’s Degree in Social Work from the University of Wisconsin Madison in 2001. Jeff lives in Waunakee, Wisconsin with his wife Kate and three children (Emerson, Bennett & Jack).

Danielle is the Pharmacist-In-Charge at Oregon Health and Science University’s (OHSU) 340B Hemophilia Pharmacy. Danielle received her PharmD at UC San Diego Skaggs School of Pharmacy and Pharmaceutical Sciences in 2014.

Danielle has experience working in community pharmacy with a focus on medication therapy management. Danielle worked as Pharmacist-In-Charge of two community pharmacy sites prior to moving to Oregon where she continued her pharmacy career at OHSU. She started working at multiple outpatient sites focusing in different areas of pharmacy in an effort to discover her niche. Danielle has pharmacist licensure in CA and OR and pharmacy distribution licensure in the additional states of WA and ID.

Danielle works as part of the Hemophilia Center with a multidisciplinary team at OHSU with the goal of optimizing health outcomes and quality of life for patients with bleeding disorders. Danielle is passionate about working closely with patients to provide supportive tools and resources in an effort to sustain and manage individualized treatment therapy plans.

Board certified in pediatrics and pediatric hematology/oncology, Dr. Soni’s clinical and research focus is hemophilia and other bleeding disorders, especially as they relate to teens. In his pursuit to finding innovative ways to connect with teen patients with hemophilia, Dr. Soni worked on a grant for special strategic communications training from the Robert Wood Johnson Foundation to create interactive media aimed at connecting with teens with hemophilia. The goal is to provide teens with information about their disorder, so that they can take control of their health, and live productive lives as adults. More recently, he received the distinguished international Bayer Hemophilia Clinical Training Award. A member of the CIBD physician team, Dr. Soni has medical staff privileges at CHOC Children’s Hospital in Orange, CA. Dr. Soni completed medical school at Saint George’s University in Grenada, West Indies, completed his residency at the University of Medicine and Dentistry of New Jersey, and his fellowship at Children’s Hospital of Orange County where today he is a hemostasis/thrombosis clinical research fellow director. He earned certification in clinical trials and product development from UCI’s graduate program.

Paul Limberis, RPh graduated from the University of Colorado – School of Pharmacy in 1979. Since that time, he has held positions as a staff Pharmacist, and Pharmacy Manager /Director in Hospital, Home Infusion, Long Term Care and Specialty Pharmacy settings. Currently, Paul is the Pharmacy Manager at The University of Colorado Hemophilia Center and serves as the HRSA Primary Contact for the site. Paul’s primary interests in pharmacy are in managing the 340B Program for the Hemophilia Center, staff development and growth, and in safe pharmaceutical practices that meet regulatory requirements. Paul has served in leadership and appointed positions with the Colorado Pharmacist’s Society, Colorado Chapter of the American Society for Parenteral and Enteral Nutrition, and the American Society of Health System Pharmacists. Paul was appointed to serve on the Colorado State Board of Pharmacy for two terms from 2005 to 2013. During that time, he served as the Board President twice. Paul also serves as a part-time Surveyor/Consultant for the National Association of Boards of Pharmacy (NABP).

John Myers is the Director of Pharmacy Operations at Cincinnati Children’s Hospital Medical Center. John has over 34 years of pharmacy experience and currently has oversite of the Home Care Infusion Pharmacy, Specialty Pharmacy and the Retail Community Pharmacies. He began working at Cincinnati Children’s Hospital Medical Center as a staff pharmacist and later transferred to the Division of Home Care Services. In 2007, he was named the Director of Home Care Pharmacy. Under his leadership, Home Care Services’ has received the PRC National Excellence in Healthcare award, Magnet recognitions, Joint Commission Infusion/Specialty Accreditations and URAC Specialty Pharmacy accreditation.

Cincinnati Children’s Hospital Home Care Pharmacy provides a full range of infusion, enteral and specialty pharmacy services, for patients living in OH, KY, and IN. The Home Care Pharmacy is also the in-house pharmacy provider for Cincinnati Children’s Hemophilia Treatment Center (HTC). For more than 25 years, The Home Care Pharmacy has been dispensing bleeding disorder medications to HTC patients and working closely with HTC staff to provide coordinated care and consistency in service.

John earned his Bachelor of Science degree from the University of Cincinnati, College of Pharmacy, and a Masters of Business Administration degree from Xavier University. He served on the Board of Directors of the Hemophilia Alliance from 2014-2020. John is currently serving on The Alliance Pharmacy (TAP) Board of Directors.